Autoimmune Disease and Depression

Life with an autoimmune disease can be challenging. With symptoms coming and going to flare ups, my disease, mixed connective tissue disease, can cause normal feelings of frustration, sadness and anger. Anxiety, panic attacks, and depression can also be a side effect of Lupus.

According to The Johns Hopkins Lupus Center, approximately one-third of all people with lupus experience depression and anxiety. Why are the statistics so high? The Lupus Foundation of America compiled these and other helpful facts about lupus and depression:

• Clinical depression may be a result of the ways in which lupus physically affects your body.
• Some of the medicines to treat lupus — especially corticosteroids such as prednisone (and at higher doses of 20 mg or more) — play a role in causing clinical depression.
• Clinical depression may be a result of the continuous series of emotional and psychological stressors associated with living with a chronic illness.
• Two common feelings associated with clinical depression [and lupus] are hopelessness and helplessness. People who feel hopeless believe that their distressing symptoms may never improve. People who feel helpless believe they are beyond help — that no one cares enough to help them or could succeed in helping, even if they tried

In understanding lupus, the most common cause is the emotional drain from the stress of coping with the complications of physical illness. Add to that economic, social, and workplace concerns. Moreover, various medications used to treat lupus—especially corticosteroids—may cause clinical depression. When certain organs or organ systems are affected by lupus (such as the brain, heart, or kidneys), clinical depression may occur.

I am not afraid to say that I have dealt with bouts of depression on and off. There is a stigma that goes with dealing with depression. Living as a black woman, I have often found my community is afraid to talk about depression. We are often told to “pray it away” instead of taking the proper steps to get treatment.

What can you do? 

We all deal with life differently, but if you ever feel like you have reached your breaking point, please don’t be afraid to ask for help. I have found this great resource from Lupus.org that I would like to share.

Seek psychotherapy. You should not feel embarrassed or hesitant about asking your doctor for a referral to a psychiatrist, psychologist, or therapist. Psychotherapy, under the guidance of a trained professional, can help you learn to understand your feelings, your illness, and your relationships, and to cope more effectively with stress. Cognitive behavioral therapy—a special type of psychotherapy—can be very helpful when you are living with chronic illness. Support groups led by a therapist or trained counselor, such as those organized by the Foundation’s national network of chapters and affiliates, also can be instrumental in helping you deal with symptoms of clinical depression.

Take antidepressant medications. Several types of prescribed drugs can help ease the effects of clinical depression. Anti-anxiety medicines are also available to reduce worry and fearful feelings. In some people, improvements can occur in a matter of weeks once medication is started.

Find ways to reduce pain. Chronic pain can be a factor in the development of clinical depression. Besides medication (which can also play a role in clinical depression), experts often recommend non-medication ways to conquer—or at least reduce—chronic pain, such as yoga, Tai Chi, Pilates, acupuncture, biofeedback, meditation, behavioral changes, play therapy, and chiropractic care.

You may consider over-the-counter treatments for your depression and/or pain. It is important to discuss all herbs and supplements with your rheumatologist or primary care provider before trying them as certain ingredients can cause reactions with your prescribed medications.

Get more exercise. If you are physically able, take part in some sort of physical activity every day. This can be as simple as walking the dog, yard work or gardening, or window shopping at the mall.

Improve your sleep habits. Not getting enough restful sleep can cause many health problems, including symptoms of clinical depression. To improve your sleep, and, in turn, your mental well-being, try to:

• Get seven to eight hours of sleep in a 24-hour period.
• Do aerobic exercise every day, such as brisk walking—or whatever you can manage.
• Avoid caffeine, nicotine, and alcohol several hours before bedtime.
• Know which medications keep you from sleeping and take those early in the day.
• Have a good mattress, comfortable bed linens, the right room temperature, and the right amount of darkness.
• Include rest periods throughout your day when needed.

If you still aren’t getting enough sleep, find a reputable sleep center and talk to your doctor about sleep medications and/or possible physical causes for your sleeplessness.

Build a support system. Stay in touch with family members, former work buddies, or long-time friends. Make phone calls, join Facebook, try videoconferencing, or consider adding an animal companion to your family.

Change your self-talk. Feelings of anger and self-pity can bring on unproductive thoughts; for example, “It’s not fair. I haven’t done anything wrong. Why me? Or I’m too weak even to fight off this illness.” Replace negative, self-defeating inner language with truthful, productive thoughts, such as: “I feel lousy, but I have many blessings.”

You can also list the people and things in your life for which you are grateful: A loving spouse or significant other; your children, and the children of your extended family; caring relatives; good friends; a beloved pet; work or hobbies you enjoy and are able to do; a home you love; volunteer activities; fellowship at school, at a place of worship, or at a community center. Try to add to this list every day!

Discover the values of volunteerism. Volunteerism can provide real emotional benefits. Helping with a charitable cause that is meaningful to you can create social, supportive connections. Helping others can have a positive impact on your sense of well-being.

Strive to accept the new “you.” Pace yourself, and don’t feel badly about delegating some of your responsibilities. Ask for help, and accept help graciously. Finally, focus on what you have and what you can do, rather than on what you don’t have and can’t do.