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Lupus Foundation of America launches online Lupus support community

The Lupus Foundation of America in partnership unveiled LupusConnect™, an online lupus community where individuals with lupus can engage with others.

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Washington, DC – The Lupus Foundation of America in partnership with Inspire, unveiled LupusConnect™, an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the challenges of the disease. LupusConnect is an easy-to-use, online platform that encourages its members to ask questions, reply to posts and read about others’ experiences in a safe and comforting community. It can be accessed 24/7 at LupusConnect.Inspire.com.

Research concluded last year by the Foundation showed that the majority of people impacted by lupus are looking for a resource to connect online with other people living with lupus. Based on this input and conversations with constituents, the Foundation partnered with Inspire to leverage its social network and build an online community that brings together people affected by lupus.

“No matter how isolated lupus can make people feel, LupusConnect offers people the opportunity to express their fears, frustrations and hopes with others who understand lupus firsthand,” said Sandra C. Raymond, Lupus Foundation of America CEO. “We are excited to partner with Inspire and to continue our commitment to providing people impacted by lupus with access to high-quality resources and support services.”

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People affected by lupus can join LupusConnect at no charge and will experience a welcoming environment. Discussions cover a wide array of lupus-related topics, and include posts by members offering practical tips and resources that they have found useful for daily living with lupus. Members also have the ability to personalize their profile, follow specific posts of interest, engage in group discussions or direct messaging of members, and can add others as friends.

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“In my experience, I’ve found that no matter what I’m going through with lupus, physically or emotionally, chances are that someone online has also gone through it,” said Joanna Mechlinski, who was diagnosed with lupus in 2002. “Within moments, I can connect with people who can give me advice or just empathize in a way that most healthy people can’t. With the launch of this new lupus online community, I hope to be able to make some new friends who understand what I’m going through.”


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Unheard Voices Magazine is a news reporting platform covered under Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research.

Unheard Voices is an award-winning news magazine that started in 2004 as a local Black newsletter in the Asbury Park, Neptune, and Long Branch, NJ areas to now broaden into a recognized Black online media outlet. They are the recipient of the NAACP Unsung Hero Award and CV Magazine's Innovator Award for Best Social Justice Communications Company.

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5-year-old helps save his family from house fire

5-year-old Juwan Perry Jr. is being held a hero after saving his family from a house fire. Juwan’s mom says if it wasn’t for her son they likely wouldn’t have survived.

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5-year-old saves family from fire in Warren Michigan
Brittany Lee hugs her son Juwan (Photo Source: WXYZ-TV/CBS Detroit)

5-year-old Juwan Perry Jr is being held a hero after alerting his mother to a house fire, saving his family lives.

5-year-old saves family

On Apr. 5th around 4:40 am, Juwan woke up to the smell of smoke in his home in Warren, Michigan.

He said he saw flames and called for his mother.

His screams came just in time, and his mom Brittany was able to get all seven of the children in the home outside to safety.

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Juwan’s mom says if it wasn’t for her son they likely wouldn’t have survived.

As for Juwan, he told WXYZ-TV his motivation for helping save his family despite the fear. “Because I love everybody,” he said.

The Warren Fire Department got the fire under control but the home is a total loss.

To help in recovering from this devastating loss, a GoFundMe has been launched to support them during this challenging time.


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Magnitude 4.8 earthquake strikes northeastern United States

A magnitude 4.8 earthquake in Lebanon, New Jersey shook the northeastern United States on Friday morning.

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Magnitude 4.8 earthquake

A magnitude 4.8 earthquake shook the northeastern United States on Friday morning.

Magnitude 4.8 earthquake

According to the U.S. Geological Survey, the earthquake was detected near Lebanon, New Jersey, at 10:23 a.m. Friday.

The earthquake was felt in New Hampshire down to Maryland.

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Notable event

According to the Richter scale, which is used to measure earthquake magnitude, they considered the event a “light” earthquake. Still, the geological survey posted on X that it was “notable.” They went on further to say earthquakes are “uncommon but not unheard of along the Atlantic Coast”.

It’s not yet clear if anyone was hurt in Friday’s quake.


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9-year-old cancer survivor killed in tragic school bus accident

A family is in mourning after a 9-year-old cancer survivor was tragically killed in an accident in Orlando.

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9-year-old cancer survivor killed by school bus Elyas Amyr Marshall-Rodriguez
Elyas Amyr Marshall-Rodriguez (Photo Source: GoFundMe)

A family is in mourning after a 9-year-old cancer survivor was tragically killed in an accident in Orlando, Florida.

9-year-old cancer survivor tragically killed

Elyas Amyr Marshall-Rodriguez got off the bus Tuesday afternoon and, as he was walking away from the bus, he dropped his football when he crawled under the bus to get it and the vehicle began moving.

Marshall-Rodriguez was in remission for leukemia when he was killed on Tuesday after being diagnosed at 2-years-old, according to his family who spoke at his vigil.

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He loved life

“He was the life of the party,” said Trenae Gayle, Marshall-Rodriguez’ cousin. “He loved football; he loved basketball. He loved all sports.”

The family has set up a GoFundMe.

The Florida Highway Patrol is investigating the incident and the investigation is currently ongoing.


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