Jenneh Rishe, a beloved endometriosis advocate, dies after pulmonary embolism

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Jenneh Rishe, a nurse who openly documented her medical journey with endometriosis, adenomyosis, dermatomyositis, and other chronic illnesses, died after suffering a saddle pulmonary embolism, a severe blood clot in the lungs. Her husband, Joe, shared the news in an April 15 post, saying doctors were unable to save her despite urgent care. She was 39.

Beloved nurse and endometriosis advocate Jenneh Rishe dies

“It is with a heavy heart that I let you all know that Jenneh has passed away. I will be providing more details in the coming days but Jenneh suffered a saddle pulmonary embolism. They were not able to save her,” he wrote.

A Voice for Patients Facing Invisible Illness

She built a strong following by sharing her experiences with honesty and compassion. She connected with more than 23,000 Instagram followers, many of whom said her posts made them feel understood during their own medical struggles.

Rishe founded The Endo, a nonprofit supporting people living with endometriosis. She also used her platform to explain the realities of adenomyosis and dermatomyositis, conditions she managed while advocating for others.

She recently began immunotherapy for dermatomyositis after months of insurance denials, describing the emotional and physical toll of delayed care. Her final post on April 2 detailed her recovery from a hysterectomy to treat adenomyosis. She offered comfort to others facing infertility, miscarriage, or surgical grief.

“If you’ve dealt with the grief of hysterectomy, infertility, or miscarriage, I hope that these words make you feel seen and understood,” she wrote.

A Legacy of Strength, Faith, and Advocacy

Rishe’s advocacy reached far beyond social media. She educated thousands about chronic illness, pushed for better awareness, and encouraged patients to advocate for themselves. Her husband said she believed deeply in her faith and carried that strength into every part of her work.

“If you know Jenneh, you know she was a faithful believer in Jesus. I believe she is now doing her advocating for the sick alongside him in heaven,” her husband wrote on April 15. “Rest in peace.”